The Jennifer Trust for Spinal Muscular Atrophy (SMA) exists to support families and individuals in the UK affected by SMA - a genetically inherited muscle wasting condition. The severest form, Type I, is the biggest genetic cause of infant death in the UK today. Children with Type II have profound physical disabilities and some do not survive beyond childhood.
1 in 40 people are carriers of the SMA gene. We provide:
• Long-term emotional support for families facing the shock and isolation that a diagnosis brings.
• Funding for pioneering research into the management and treatment of this devastating condition.
• Grants for the expensive, complex equipment needs of children and adults with SMA.
